Information for Families
Comprehensive resources and information for families living with CASK disorders.
Resources for Families
Support
Advice, ideas, understanding CASK gene mutations and links to services that can help.
Prognosis
CASK gene related disorders are a spectrum of conditions. No two children are the same. Each will write their own destiny.
About CASK + FAQs
Some medical conditions are more common in those with CASK gene mutations.
Family Stories
Stories from UK families living with a diagnosis.
Leaflets
On this page you will find leaflets, flyers and information packs to download.
Useful Publications
Read the research on CASK or direct your clinicians to this information.
We are always in need of photos for our promotional materials. Please complete the photo permission form where you can also upload some photos of your CASK warrior.
Photo permission form