Support Us · Campaigns
CASK Gene Awareness Day
CASK Gene Awareness Day is on 15th July. During the week of the 15th the community celebrates CASK warriors and remembers those lost to the condition.
Video resources
The CASK Research curated playlist features:
Social media campaign
Participants customise profile pictures by adding photos of their loved ones affected by CASK, or use pre-made awareness designs.
Merchandise
T-shirts featuring two eye-catching designs are available worldwide. "Every penny goes towards funding research to help find treatments for our CASK warriors."
Purpose
- Unite the community through solidarity and hope
- Increase understanding among friends, families and professionals
- Highlight disabling symptoms like infantile spasms
- Communicate the need for treatments and research
Ways to participate
- Share personalised FAST FACTS leaflets
- Promote the CASK Coalition
- Distribute videos and animations
- Subscribe to newsletters and social media
- Change profile pictures using the awareness tool
- Join Race for Research events
- Organise fundraisers like coffee mornings
Educational materials
FAST FACTS leaflets provide quick education about CASK in English, Polish and German, with customisable options for adding photos. Additional resources include organisational flyers and medical diagnostic guides for neurology teams.
