Get ready for Rare Disease Day 2026!

Rare Disease Day on 28 February is THE day to raise awareness of CASK Disorders and all rare diseases. The observance is a worldwide coordinated initiative focused on advancing equity in healthcare access, diagnosis opportunities, and therapeutic treatments for individuals living with rare conditions.

Our challenge: tell at least THREE people who aren't already aware of CASK disorders or rare diseases in general, about CASK. This is an outward-looking effort to expand community understanding rather than focusing conversations within existing networks.

For more activities and resources, visit our Rare Disease Day page — and become an active ambassador for rare disease awareness during this significant annual observance.